EU health data centre and a common data strategy for public health / this study has been written by Henrique Martins of ISCTE-Lisbon University Institute and Faculty of Medical Sciencies, UBI Portugal, at the request of the Panel for the Future of Science and Technology (STOA) and managed by the Scientific Foresight Unit, within the Directorate-General for Parliamentary Research Services (EPRS) of the Secretariat of the European Parliament.
.-- Brussels : European Union, September 2021
.-- 97 p. ; 1 documento PDF
.-- (EPRS Studies; PE 690.009 ).
Regarding health data, its availability and comparability, the COVID-19 pandemic revealed that the EU has no clear health data architecture. The lack of harmonisation in these practices and the absence of an EUlevel centre for data analysis and use to support a better response to public health crises is the focus of this study. Through extensive desk review, interviews with key actors, and enquiry into experiences from outside the EU/EEA area, this study highlights that the EU must have the capacity to use data very effectively in order to make data-supporte d public health policy proposals and inform political decisions. The possible functions and characteristics of an EU health data centre are outlined. The centre can only fulfil its mandate if it has the power and competency to influence Member State public-health-relevant data ecosystems and institutionally link with their national level actors. The institutional structure, its possible activities and in particular its usage of advanced technologies such as AI are examined in detail. Policy options on how to set-up such an EU health data centre and a common strategy for health data are put forward as ways to achieve a public health datafication multi-level process in the EU, and create a central coordination and support structure with advanced digital public health functions, that bear the potential to significantly alter public health in the EU, for smouldering public health crises such as cancer, mental health and obesity, as well as cross-border large-scale threats.
Reproduction and translation for non-commercial purposes are authorised, provided the source is acknowledged and the European Parliament is given prior notice and sent a copy.
978-92-846-8151-8
10.2861/70808 doi
Sanidad digital
Europa
salud pública datos salud EU centro de datos sanitarios estrategías
Parlamento Europeo. Dirección General de Servicios de Estudios Parlamentarios Parlamento Europeo. Dirección General de Servicios de Estudios Parlamentarios. Unidad de Prospectiva Científica. STOA