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008 211013s2021 ||||eot|||i00| 0 eng d
020 _a978-92-846-8151-8
024 _2doi
_a10.2861/70808
040 _aES-MaONT
100 1 _95238
_aMartins, Henrique
245 1 0 _aEU health data centre and a common data strategy for public health
_c/ this study has been written by Henrique Martins of ISCTE-Lisbon University Institute and Faculty of Medical Sciencies, UBI Portugal, at the request of the Panel for the Future of Science and Technology (STOA) and managed by the Scientific Foresight Unit, within the Directorate-General for Parliamentary Research Services (EPRS) of the Secretariat of the European Parliament.
260 _aBrussels :
_bEuropean Union,
_cSeptember 2021
300 _a97 p.
_c; 1 documento PDF
336 _2isbdcontent
_atexto (visual)
337 _2isbdmedia
_aelectrónico
338 _2rdacarrier
_arecurso en línea
490 _aEPRS Studies
_v; PE 690.009
520 _aRegarding health data, its availability and comparability, the COVID-19 pandemic revealed that the EU has no clear health data architecture. The lack of harmonisation in these practices and the absence of an EUlevel centre for data analysis and use to support a better response to public health crises is the focus of this study. Through extensive desk review, interviews with key actors, and enquiry into experiences from outside the EU/EEA area, this study highlights that the EU must have the capacity to use data very effectively in order to make data-supporte d public health policy proposals and inform political decisions. The possible functions and characteristics of an EU health data centre are outlined. The centre can only fulfil its mandate if it has the power and competency to influence Member State public-health-relevant data ecosystems and institutionally link with their national level actors. The institutional structure, its possible activities and in particular its usage of advanced technologies such as AI are examined in detail. Policy options on how to set-up such an EU health data centre and a common strategy for health data are put forward as ways to achieve a public health datafication multi-level process in the EU, and create a central coordination and support structure with advanced digital public health functions, that bear the potential to significantly alter public health in the EU, for smouldering public health crises such as cancer, mental health and obesity, as well as cross-border large-scale threats.
540 _aReproduction and translation for non-commercial purposes are authorised, provided the source is acknowledged and the European Parliament is given prior notice and sent a copy.
650 7 _aSanidad digital
_92065
651 0 _92198
_aEuropa
653 _asalud pública
653 _adatos
653 _asalud
653 _aEU
653 _acentro de datos sanitarios
653 _aestrategías
710 _aParlamento Europeo.
_bDirección General de Servicios de Estudios Parlamentarios
_93675
710 _aParlamento Europeo.
_bDirección General de Servicios de Estudios Parlamentarios.
_bUnidad de Prospectiva Científica.
_eSTOA
_96140
830 _94888
_aEPRS Studies
856 4 _uhttps://www.europarl.europa.eu/RegData/etudes/STUD/2021/690009/EPRS_STU(2021)690009_EN.pdf
_x0
_yAcceso al documento
_qpdf
942 _2z
_cINF
999 _c6743
_d6743